E. Fuller Torrey, M.D., this year’s IPS keynote speaker, has for decades been a fierce advocate for patients with schizophrenia and other serious mental illnesses (SMI) in the public sector.

The psychiatrist and schizophrenia researcher E. Fuller Torrey in his home in Bethesda, Md. “This is the largest single attempt to change the thing that we said we wanted to change,” he said. Credit...Shuran Huang for The New York Times

Dec. 11, 2022

BETHESDA, Md. — The psychiatrist E. Fuller Torrey is 85 years old and has Parkinson’s disease, the tremors at times so strong that his hand beats like a drum on the table.

Still, every morning when he reads the newspapers, he looks for accounts of violent behavior by people with severe mental illness, to add to an archive he has maintained since the 1980s.

His records include reports of people who, in the grip of psychosis, assaulted political figures or pushed strangers into the path of subway trains; parents who, while delusional, killed their children by smothering, drowning or beating them; adult children who, while off medication, killed their parents with swords, axes or hammers.

Dr. Torrey, who has done pioneering research into the biological basis of schizophrenia, has used these stories in service of an argument: that it was a mistake for the United States to shut down its public psychiatric hospitals without adequate follow-up care. And that to remedy this, the government should create systems to compel seriously mentally ill people in the community to get treatment. 

For much of his career, Dr. Torrey was a lonely voice on this issue, disavowed by patient advocacy groups and by organized psychiatry. But his ideas are now animating major policy shifts, including the announcement by Mayor Eric Adams of New York last month that city officials would send people with untreated mental illnesses to hospitals, even if they posed no threat to others.

“This is the largest single attempt to change the thing that we said we wanted to change,” Dr. Torrey said.

“I think the stakes are large,” he added. “Because if it fails, if you have no improvement at all, I think people give up for another decade, just live with it for another decade before somebody else comes along with a new idea.”

Dr. Torrey’s influence on New York City’s policy is profound. The mayor’s adviser on this matter is Brian Stettin, who was thrust into mental health policy in 1999 when, as a lawyer in the office of Attorney General Eliot Spitzer of New York, he was asked to draft Kendra’s Law, named for a woman who was pushed in front of a subway train by a man with schizophrenia. The law allows a court to order a person with mental illness to comply with an outpatient treatment plan, risking involuntary commitment if the person refuses.

At the time, Mr. Stettin turned to Dr. Torrey’s organization, the Treatment Advocacy Center, for guidance and became such a believer that after leaving state government, he spent more than a decade as the group’s policy director. In an interview, Mr. Stettin described Dr. Torrey as “the single greatest influence on my thinking about the role of law and policy in ensuring the medical treatment of severe mental illness.”

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Ira A. Burnim, the legal director of the Bazelon Center for Mental Health Law, said that in the course of arguing for his ideas, Dr. Torrey had overstated the dangerousness of people with severe mental illness, changing the way they are viewed.

“Every time there was a sensational crime involving a person with mental illness, Fuller Torrey would be out there, saying this is what happens when you have our current civil commitment laws,” he said. “Among the outcomes of Fuller’s work is the fear of people with mental illness.”

He added that Dr. Torrey had been extraordinarily effective at building a consensus in favor of compulsory outpatient treatment. “That’s where Torrey wants to go — if you need treatment, you can be picked up,” he said. “We’ve lost. You’ve got to understand, we’ve lost.”

The education of a skeptic

It is, perhaps, no surprise that Dr. Torrey became an outlier in his profession. He was a sophomore at Princeton when his mother called to tell him something was wrong with his sister, Rhoda, who had just turned 18 and was due to start college in the fall. She was lying on the front lawn, shouting, “The British are coming!”

He accompanied his mother to meetings with eminent psychiatrists, who lectured them on the possible causes of his sister’s schizophrenia. The chief of psychiatry at Massachusetts General Hospital suggested it was the trauma of his father’s death. The chairman of Columbia’s psychiatry department pointed to “family problems.”

“I knew it was nonsense from the beginning,” he said. “It made no sense whatsoever.”

Later, when he became a psychiatrist himself, Dr. Torrey fantasized about rounding up all the psychiatrists “who had these nonsense theories” and putting them on trial in a football stadium full of patients’ families. As a researcher, he plunged into the task of searching for biological causes for the disease. But it was too late for his mother, who took the Columbia chairman’s word for it.

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After her diagnosis, Dr. Torrey’s sister never lived independently again, moving from a public hospital to a series of group homes. She died at 70. It wasn’t a good life, Dr. Torrey said, but someone was always looking after her.

He could not say the same of the former residents of public psychiatric hospitals, who, as a result of deinstitutionalization, dispersed to a more isolated, precarious existence in apartment buildings or nursing homes.

“Most of us who would be on the street would say, ‘Oh, we’d love to have our own place,’” he said. “I think a lot of these people don’t want their own place. They do better in a group home.” A few of them, he said, discovered a strategy that would send them right back to the state hospital: They set fire to their rooms.

An idea takes hold

 

Mayor Eric Adams in City Hall in October. “I think that Adams is brave to try it,” Dr. Torrey said. “It’s going to be difficult. Does it make me nervous that it might fail? Yeah.”Credit...Dave Sanders for The New York Times

In the course of this campaign, Dr. Torrey has used statistics selectively to send a simplified message that untreated mental illnesses are a major cause of violence, said Jeff W. Swanson, a sociologist at the Duke University School of Medicine who has researched dangerousness.

“Unfortunately, that doesn’t comport with what the epidemiological research says,” he said. About 4 percent of violent acts can be directly attributed to mental illness, and many of them are low-level assaults, he said, “things like pushing and shoving and slapping people.” But the fear that followed catastrophic incidents proved powerful, politically.

“Fuller is a communicator — he wants to put information out there that moves hearts and minds and policymakers,” Dr. Swanson said. He also worried, like other experts interviewed, that tougher commitment laws could work only if mental health services like psychiatric beds and clinical care were widely available, which they are not.

“It’s absolutely correct that we need to get severely mentally ill people off the streets and out of awful conditions and into some sort of care,” said Dr. Talbott, who served as superintendent at Manhattan State Hospital, which is now Manhattan Psychiatric Center. “But we have destroyed the care system in large parts. So I don’t know how to do it overnight.”

Dr. Torrey said he shared that worry and had little sense of whether New York was prepared.

“I think that Adams is brave to try it,” he said. “This is difficult. It’s going to be difficult.” He added: “Does it make me nervous that it might fail? Yeah. If I was 20 years younger, would I go up to New York and help them? I might.”

But policy is not the first thing Dr. Torrey thinks of when he wakes up in the morning. What he wants to know is why his sister got sick.

He was exuberant last week about new research that had found that wolves in Yellowstone Park made more risky decisions when they were infected with a parasite, toxoplasma gondii. His own research has found evidence that the same parasite plays a role in schizophrenia. He thinks he knows who passed it to Rhoda: the family cat, Butterball.

Dr. Torrey also knows that his time is limited. The tremor in his hand began just after his 77th birthday, and he knew right away that it was Parkinson’s. Since then, he has tracked the progress of the disease with close attention that verges, at times, on enthusiasm.

“I’ve tried to learn about the brain my whole life, and now my brain’s gone south,” he said. “I get to observe it! That’s exciting! The brain is fascinating! It is me! I am an N of one!”

He is now in his 12th year with the disease. By year 15, he said, 80 percent of people with the disease have developed dementia. This is something he wanted Mr. Adams to know.

“They better work fast in New York,” he said. “I want to know what happens. I want to see the results of this experiment before I become demented.”

A version of this article appears in print on Dec. 11, 2022, Section A, Page 1 of the New York edition with the headline: A Doctor Has New York’s Ear On Mentally Ill. Order Reprints | Today’s Paper | Subscribe